Just a quick update...They have turned off McKay's oxygen support completely and he is breathing well on his own. We are waiting on a blood gas test to confirm he is able to hold his levels in a safe zone. Cross your fingers. Hold your breath. Say a prayer. We would love to take our little man home under his own steam.
On the feeding front, McKay is starting to get hungry. I'm hoping they can move his feeding tube from his intestines to his stomach today. It's one thing to be nourished and quite another to feel full. McKay is aware of the difference and is fussing quite a bit about it.
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Matt.Mindi.Tyler.Preston.McKay.
Live. Laugh. Love.
About McKay
Mr. McKay is a miracle. He was diagnosed with a soup of congenital heart defects while still in utero including: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has undergone a series of three open heart surgeries to reroute his plumbing into a flow more likely to meet his growing body's demand for oxygen. He is post BT Shunt (August 22, 2008) and post-Glenn (November 25, 2008), and most recently traveled cross country to have the Fontan procedure at the Children's Hospital of Philadelphia (July 9, 2010). Today, McKay is a growing near-three-year old challenged with developmental hurdles we are anxiously trying to help him overcome. McKay offers heart baby hope of the most robust proportions. This blog chronicles our adventures.
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"Life is not about waiting for the storm to pass. It's about learning to dance in the rain."
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"It does not mean to be in a place where there is no noise, trouble or hard work. It means to be in the midst of those things and still be calm in your heart."
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2008
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August
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- Mama, I'm Coming Home
- Did you bring your car seat today?
- Success!
- Just One More Hurdle
- On His Own
- A Day of Rest for McKay
- Fabulous Firsts
- Look Mom, No Tube!
- What a Rock Star
- Not so fast...
- Take a Deep Breath
- A Fearless Heart
- Earl is the MAN!
- Little Man, Big Day
- Sweet Dreams
- Welcome Baby McKay
- Packed Bags and Polished Toes
- Hooray, Hooray for Wednesday!
- Update
- Postponed?!
- Speed Demons (with training wheels!)
- Wedding Day
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August
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3 comments:
Go McKay, I will be praying for you!
That is soooo great! What a little trooper! So proud of him! We are praying. Kaden asked tonight who is the Cox family that we are praying for? It's been to long since we got everyone together I think!
Love ya,
Jaci
Matt and Mindi--
I just wanted to let you know I am thinking of you on a daily basis and I am so glad to hear things are going well. It seems like every time I check your blog McKay has made another step in the right direction. What a little fighter! He has done everything according to plan! He must know there are good things waiting at home! :0) I will continue to keep you in my prayers. Keep the blog posts coming! Love you both. Em
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