Thursday, January 21, 2010
Mac is a champ. More to come when we have the time.
Thank you so much for all your care and concern. This was a minor hurdle, but we're glad to have cleared it.
Wednesday, January 20, 2010
Thursday, January 14, 2010
But he doesn’t walk. He swaggers. Like some wild west sheriff taking stock of his town.
Tuesday, January 12, 2010
And the verdict is…
Tubes. After taking McKay’s history, our new specialist agreed we needed to check this little complication off our big guy’s list. Then he impressed me. Most docs, it seems, don't like to share. Procedures. Operating rooms. Focus. But he asked if I had any objections to doubling up on procedures when they sedate McKay for an echocardiogram in the next month or two. Absolutely not. The less anesthesia episodes the better. It was a move that showed his humility and respect for Mac’s heart...and mine. Love that.
Friday, January 8, 2010
I mentioned his like of this position to his pediatrician at his Synagis appointment on Tuesday--by the way, it's been two weeks since the Rocephin shots and there's no sign of another ear infection!!-- and he grew intensely interested. After a discussion of when and why he might be throwing himself into the downward dog several times a day, he mentioned something to me about "Tet movements."
According to Mac's doc, Tet movements were dubbed so when doctors observed kids with a congenital heart condition called Tetrology of Fallot getting into body positions that promoted increased blood flow or decreased pulmonary pressures. It can be a headstand, a deep squat, anything that opens up arteries and increases blood flow. Interesting, no?
He theorizes that McKay can sense when he needs increased blood flow to the brain or decreased pressure in his pulmonary arteries and so assumes the downward dog position until he feels better. Mac's pressures have always checked out great through echos and a heart cath, so I'm not overly concerned with the new practice. Of course I will discuss all this with McKay's cardiologist, but for now I am absolutely fascinated by the idea and wonder if anyone else has experienced this with their kids.
The additional bonus to Mac's little workout routine is a decidedly stronger upper body and the ability for him to transition from the floor to standing without any assistance. It seems daily yoga is making McKay stronger.
I just thought I'd chronicle this little oddity and ask if other heart families have observed similar behavior in your little ones. Because, hey, if there's enough of us, perhaps we could start a studio. How posh would that be? :) Namaste.
Friday, January 1, 2010
in with the mojo required to let good things happen.
Out with crowds of others to please;
in with soul mates who take me as I am
and remind me who I can be.
Out with treadmills to nowhere;
in with runs that respect the journey.
Out with pandemic illness and worried nights;
in with health in mind, body, and spirit.
Out with fighting what is;
in with welcoming all that can be.
Out with lectures;
in with example.
Out with frustration;
in with laughter.
Out with chaos, unrest, noise;
in with the peace of three busy boys.
You will be a decade of changes. And victories. And joy.
Deep-down, cannot-put-words-to-it, beyond-the-smiles-on-our-faces JOY.
We will look for it everywhere. We will find it in everything.
Because you usually get what you expect.
In life. In people. In every day.
Here's to a truly Happy New Year.