Just in case you thought that Mac's insistence on sleeping with a blanket over his head could be masked by a lot of drugs, you were wrong.
Matt
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Matt.Mindi.Tyler.Preston.McKay.
Live. Laugh. Love.
About McKay
Mr. McKay is a miracle. He was diagnosed with a soup of congenital heart defects while still in utero including: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has undergone a series of three open heart surgeries to reroute his plumbing into a flow more likely to meet his growing body's demand for oxygen. He is post BT Shunt (August 22, 2008) and post-Glenn (November 25, 2008), and most recently traveled cross country to have the Fontan procedure at the Children's Hospital of Philadelphia (July 9, 2010). Today, McKay is a growing near-three-year old challenged with developmental hurdles we are anxiously trying to help him overcome. McKay offers heart baby hope of the most robust proportions. This blog chronicles our adventures.
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LIFE
"Life is not about waiting for the storm to pass. It's about learning to dance in the rain."
PEACE
"It does not mean to be in a place where there is no noise, trouble or hard work. It means to be in the midst of those things and still be calm in your heart."
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2010
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July
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- Home
- His Way, All the Way
- Paroled
- Sincere Thanks
- Soggy
- Tube Drama
- How Do You Mend a Broken Heart?
- Best Thing, Worst Thing
- Patience
- 90-what?!
- Day Four: Reasons to be Encouraged
- Day Four: Encouraged
- Day Three: Yucky Lungs, Low Sodium
- Day Three: Prayers Please
- Day Two: Progress
- Day Two: Good Morning
- Update 3
- Update 2
- The Big Day: Update 1
- Little Lines
- Let it Begin
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July
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14 comments:
How precious!! :) I'm so glad surgery went so well and SO fast!! I'll be keeping McKay in my prayers!
We just got home from youth conference and I had to run in and check on your sweet little guy. Sounds like your surgeon was amazing!! Five hours??! Wow. I hope that he can stay nice and drugged to keep him from feeling the horrible reality of life after surgery, but mostly I pray that the next few days show lots of chest tube drainage and lots of great post op results. Keep those posts coming! We are praying for you!
What a cute little personality shining through all of that pain!!! So glad to hear that things are going 'so far, so good'. We will keep you in our prayers!!
That is awesome--pretty sure I'd like to shut the cruel world out too after what he's been through! McKay is a stud.
That is the CUTEST -- ever!
xxoo, Lynn in MD
I've followed your blog quietly, but that video made my day. I'm so glad that his surgery went well. Praying the same for his recovery.
Matt was right...that was awesome!
Awww...that is adorable. What a cutie. Praying for good xrays and lots and lots of drainage and a smooth recovery for McKay.
That was precious!! I think it is so amazing how they can be through something so big and still do their "normal" routine of things such as wanting to sleep with a blankie over their head. So sweet!
Praying for a smooth recovery!
So glad to see McKay showing his darling personality after all he has been through. That video made us laugh so hard and so glad you posted it. Keep up the great work McKay!
He is so cute!!! Give the little dude a kiss for me. Thinking about all of you. Love Auntie Leslie
Awww, my husband and I just giggled at that! How cute to have got it on camera!
The cutest thing. He is such a stud. What a sweetheart. :) Love that you have it on video. Matt and Mindi - love you guys, too. You also are a stud and studette. :)
Quinn absolutely loves the video...he keeps hitting the replay button, laughing hysterically!! Lynn
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