More good news from our new OB this week. After another ultrasound and a review of the diagnosis from our cardiologists, he said we don't have to do the 32-week amniocentisis! The point of that test would have been to prepare us to deal with any severe chromosomal abnormalities that can accompany some congential heart conditions. But from what he sees from the way the baby is developing, he said he is no longer concerned enough about chromosomal problems to add possible risk to the pregnancy. That is great news! I always felt uneasy about that test for some reason and now I don't have to decide to go with my gut or my head--both of which are on overload right now.
We also received news that Matt's second cousin Cassie (odd that we even know Matt's second cousins, but he comes from an exceptionally close family) who is pregnant with her first little boy was recently diagnosed with Hypoplastic Right Heart Syndrome (similar to our original diagnosis). It's hard to believe that two conditions, DILV and HRHS, that are so rare and so foreign to our family history are now becoming a part of our vocabulary. It also seems remarkable to me that our babies are likely to share some time in the PICU together if not through their first surgeries, then for their Glenn and Fontan operations. Where God sends trials he also sends unexpected sources of strength. Hopefully, our babies can strengthen each other to push through their rough starts to grow up big and strong and full enough of themselves to compare scars. Please keep Cassie and her baby in your prayers.
My other boys are doing great as well. Preston has finally got the hang of potty training and I could not be happier. They both seem so big and independent lately. I feel ready to have another baby in the house and am truly looking forward to a fantastic summer full of mini-adventures with them.
We feel so blessed by all of your well wishes and offers of help. We are actually doing fantastically well. Until next time!