I wrote this a week or so ago and must have purged it from my system then because I only now just realized it never made it to the blog. We will catch up on Easter and babbling and procedures coming soon, but for now we say good bye to a dear friend and frustrating enemy:
End of an Era
We had our last visit with your painful magic yesterday (now a week ago). It was bittersweet.
The doctor says he’s certain the insurance company will not approve another season for us under your protection. They tried to keep us away this year. But we fought. We were approved. And the RSV came. I’m convinced you save Mac’s life.
No, there will be no more. They say by the age of two McKay will be strong enough, big enough, to fight RSV all on his own. It’s a gamble they play between the cost of the shot, the odds of him getting sick, and the time it would take him to heal in the hospital if it got to that point. Let the cheapest outcome win.
So here we go. Growing up bit by bit. Becoming more confident in our judgment. More confident in our little man’s ability to hold his own. More aware that the rationing, the committees of people who qualify and disqualify patients for care, and the casualties of those decisions are real. They exist. They’ve always existed. Knowing that the people who deal in fear mongering, half truth, and rumor do so to distract our eyes from how broken and inequitable the system they’ve created has become. We feel so blessed to be surrounded by advocates who know how to navigate your twisted paths. Who slay the dragons that block our way and lead us back to safe havens.
So good bye Synagis. You’ve been a $30,000+ comfort. Overpriced and worth every penny. We’ve hated you. We’ve loved you. We’ve needed you. We will miss you.